Iv have been noticing A LOT more people with CF out running and exercising.
Finally. I always found it funny, that Doctors always kept saying that "running isn't enough. You have to do physio". Well I don't do physio but I run a heck load. When I was younger, we did do physio and maybe 6 times a day. It's was a lot more of getting tickled and clapping on the chest area. Cupping is the correct term. But I can't remember the last time I got that done. I don't find the flutter any use, and the pep mask is ok. But you can't beat running. It causes a vibration, and also works the repiratory muscles at the same time. It's simple when you think about it.
But going to the Doctors, and hospitals, I was never once told that "you must be doing something right". I think I must be doing everything right. As in not going to hospital or been on any IV treatments. But still years have gone past without them thinking, "Evan seems to run a lot. He's never in hospital and his lung function never drops. He runs that much and keeps the same weight on". Well for some reason, the word has spread. It wasn't u til I got an email asking "are you the CF runner. Your picture is above the treadmill in the hospital". I found this weird, seen as Doctors never really said anything. Someone must have read the article and seen the picture, and decided to post it up in the physio room. It seems like a bit of inspiration for them. People thought that running sub 10 seconds for the 100m until someone did do it. Now it's a regular occurrence. People are always running sub 10 seconds. I dont want this to sound big headed, which it probably does sound. But I like to look at my situation and think its a success, and a positive story. There isn't many success stories with CF. The only one I'm aware of is Nathan Charles who plays professional rugby in Australia. He's doing very good for himself.
It just shows you that you can do it, even if you have CF. We are all born with clear lungs, it's just our responsibility to keep them that way.
I will write an elaborate post tomorrow. I just wanted to post this one before it goes out of my head.