Lung Function Down
Anytime I say something about my PFT being down, or that I'm sick, I always get some sort of reply of "you don't know what sick is like. You haven't really been sick". What I always think in my head is firstly, shut up, secondly, why does another person with CF try to bring another PWCF down when they actually live a life outside of hospital. Is it jealously? Is it regret that they now think back at when they were being rebellious and stopped taking their medication, or skipped it for a while because they "forgot"?. Maybe I don't know what really getting sick is like, but that because I work my arse off, and I'm certain, I work it off more then any other CF in the world. I don't want to sound arrogant, or cocky, but it's the way I feel. Actually, can you think of any other person who runs 10 times a week, and does 2 days strength and conditioning work, while doing a physically demanding job?
Finally. Why do you think I run? Because I love it? Yea, that is partially to do with it. But doing something 10 times a week can soon become monotonous. The other part of my reason for running is so I don't have to stick an IV in my arm and get visitors from loved ones while I'm in hospital. It's no surprise that the new CF Unit in Vincent's has a treadmill in every room.
So while the haters are sending me emails, or commenting under my stories from their hospital beds, and I'm lacing my runners up to go on a run. Instead of exercising your fingers on your keyboards, why don't you start exercising your legs on the treadmills beside you. Have a little hope in your life and stop begrudging other PWCF who are actually keeping healthy.
If you feel like you get annoyed or angry about my story then don't read
So here's the part about my PFT (Pulmonary Lung Function)
For the first time since 2006 my lung function went down. My FEV1 is now 74%. It's normally around 86-90%.
The reasoning behind this is from the crazy allergic reaction to Aspragillus that I recently found out about and it's caused havoc with me. I only have one explanation for it, and that is being exposed to it down in a forest in Waterford. I could be wrong but that's the only thing I can think of.
I have been running 50-70 minutes a day. Feel ok, but nothing great. My chest is still annoying me. Check out the mask I got to help me when I run in forests and places that might have mould (aspragillus). Bane from Batman or what??
After the visit. Prof decided to put me on Symbicort. He suggested Seritide, but I honesty didn't think it was great. Ive heard great things about Symbicort so might as well try it out. I'm on it for 3 months and then review my situation.
I'm on it for 2 days now. I feel a difference already but maybe a placebo? Hopefully not.
Next week, I am increasing my weekly mileage and start doing an hour a day running with an 80 minute long run at the weekend!