I used to take Pulmozyne (DNAs) everyday. I'm not sure if I outgrew the affects but I didn't find it usefull towards the end. I don't actually use it now. The reason behind it was that when I started coughing blood, my team, and by team, I don't mean my doctors. I mean my family. We found out that DNAs can make me cough up blood. Also TOBI is another neb that can have these side affects. So basically I stopped both of them. I was put on Zythromax tablets every second day instead of the TOBI, amd the hypertonic saline 7%.
CF'ers can't retain salt in our system. It's complicated to get into the ins and outs of it, and I can't really explain it. How stupid is that. Anyway, we take more salt in our diets then the normal person. (and yes I said normal. We are not normal). I actually like eating salt. Sea salt rocks. Dont get me wrong. I actually don't sit down and start eating salt while watching TV. It's not considered my mid night snack. But I do lash the salt on my food.
In hot summer days, I have to put salt on a teaspoon and down the hatch. So running in hot weathers is hard if I don't drink with glucose/salt in it. But if I wasn't training and just walking around then I wouldn't recognise it. Just during runs, particularly towards the end, I start to sweat, and it's not just a small sweat, it's like my skin is an under water spring. So I have to keep on top of that during training in warm weather.
I just find it amazing that salt, and vaporised salt can have such an affect. I'm not saying it's great that it's natural because a lot of drugs originate from a natural source. Take Aspirin. It's from powdered willow bark. I find it funny when people say I want to use natural remedies. Aspirin is natural!
Back to salt.
I found out about this place in Malahide, Co Dublin.
http://www.salttherapyspa.ie/
Iv sent them an email to find out more about it, so if they get back, I will post the questions I asked them.
Just on a different note. Here's a good diagram of what organs/areas are affected with having CF.
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